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NF Strong Walk

    

Event details

Event Name:  NF Strong Walk
Venue:  Overton Park Farmer's Market Pavilion
Venue address:  389 E PKWY N
                Memphis, Tennessee
                38112
                USA
Event Start:  11.06.22  - 10am
Event End:    11.06.22  - 12pm
Event Website:  https://runsignup.com/Race/TN/Memphis/NFStrongTN
Expected number of attendees:  80
Requested number of characters: 
Requested character types:
Secure changing/staging area: No
Can troopers carry blasters: Not specified
Can troopers carry/bring props like lightsabers and staffs: Not specified
Is parking available: Yes
Is venue accessible to those with limited mobility: Yes
Amenities available at venue: There is a restroom nearby at the playground that characters in the past have used.
Water for sure will be there. We are unsure of what foods will be there, but y'all are welcome to anything that we have.
Comments: We are planning on having our annual NF Strong walk on Sunday November 6, 2022. We are wanting to extend an invitation for you to join as our special guests. We missed you last year and wanted to give you more notice for this year's event.


I am the head chair of the #NFStrong Walk for the Memphis area. My family and friends put our hearts and souls into this annual event as it grows bigger and bigger every year. I would like to invite you to join us. I was hoping your organization could send a few characters out to visit with our special needs families. Everyone's neurofibromatosis experience is unique.... My daughter Kaitlyn was diagnosed with neurofibromatosis (NF1) when she was a infant and she also was born with other handicaps. Kaitlyn is a seventeen year old fighting neurofibromatosis. One child out of every 2500 is born with NF. Neurofibromatosis is a chromosome disorder that can cause tumors to grow on the nerves throughout the body at anytime. NF is responsible for learning disabilities, seizures, hearing and vision loss, deformed bones,, scoliosis and many more difficulties. Kaitlyn has five lesions on the inside layers of her brain, one lesion on the outside of her skull, one between her brain!
  and her skull in the back of her head, one in her hip and one on her lung. In April 2015 she had a 6x9 tumor removed from the back of her head between her skull and scalp. MRIs have shown that the tumor has already grown back. NF has also given her epilepsy, scoliosis and learning delays.  The goal of the #NFStrong Walk is to spread neurofibromatosis awareness and raise funds for NF Network Foundation, while also expanding the NF community. This is an event where everyone is welcome and it's okay to be different. We would be honored if you could join the fun at our Annual Memphis #NFStrong Walk on November 6, 2022! 
If you have any other questions feel free to contact myself or Ashley Sola with the NF Network. asola@nfnetwork.org

More about the foundation and the walkhttps://www.nfnetwork.org/events/nfstrong/nfstrong-walk-memphis-tn-1?fbclid=IwAR2KAuguDqqjN5rKzHb5VpR1YDc7OiST5YO80l79UcYpw9XV7eGQhv3fvFA  

More about my daughter and her life with neurofibromatosis.curenf4kaitlyn.blogspot.com
Referred by:  You have come to this event in the past (before covid). We have seen you at several special needs events. You are always a HUGE hit! Rather you come to our event or not...Thank you for all the smiles you share with our special needs families!

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